Hey Bex, are you eating carbohydrates from grain sources? For example, rice, quinoa, millet et cetera. Because the symptoms you describe are exactly the same as that written in the book Breaking the Vicious Cycle. I have similar symptoms but not nearly as bad as yours.
You said you showed improvement by eliminating white sugar, wheat/gluten, which proves you have a serious infestation of your colon. Eliminating white sugar, wheat/gluten will never cure you and likely you will just get worse, and that is what happened to me. Those are only part of the food source of the unfriendly bacteria in the colon. What happens is that you are unable to digest complex carbohydrates (disaccharide 2-sugar molecules).
Impared digestion of dissacharides.
Malabsorbtion of disaccharides.
Bacterial overgrowth.
Increase in bacterial by-products and mucus production [in the intestines, causing malabsorbtion]
Injury to small intestine. [malabsorbtion of nutrients]
And the cycle goes back to Impared digestion of dissacharides.
I read this book yesterday and I was thinking about your problem, and even Russ's and of course mine. Mercury plays a part in this, but given that Russ and you have already gone through chelation and now you can't even do that(!) it seems quite reasonable to consider the information in this book. You two don't sound like you're making any progress, and that's a problem.
So far I have been doing it for 4 days, and the skin on my face and head (which one could call dandruff) is emensely improved. My skin isn't going through massive shedding cycles and is almost normal. After 10 years, I finally found out something that makes sense (other than mercury poisoning, which is only part of the story). I remember that the Chinese relate the face to the small intestine if I recall correctly. I have always had malabsorbtion problems since I was a kid due to a terrible high sugar diet + mercury. Because my face is improving, I see that as a sign that my GI tract is improving. I am experience other positive improvements...
http://www.amazon.com/Breaking-Vicious-Cycle-Intestinal-Through/dp/0969276818http://rapidshare.com/files/215373315/Breaking_the_Vicious_Cycle_10th_ed_by_Elaine_Gottschall.rar