It is wonderful to have a site for Hyperacusis – thank you Russ.
Over the years and reading of so many experiences of those diagnosed with Hyperacusis – it has become clear to me that the suffering can vary greatly. Where some enjoy listening to soft music to heal themselves – others experience fierce pain and nausea with the very same soft music. On top of that, as it is so – ‘odd’ - - for many GPs and even some ear specialists – it took my GP more than 2 years to comprehend that Hyperacusis is not experienced with ‘loud’ sounds – but the fact that your ability to hear is stuck on HIGH volume. Therefore at times, some can practically hear a mouse snore

I have been fortunate to have worked with 3 different specialists, in 3 different countries. It was interesting to experience the differing approaches to this concern. In their turn, each method has worked well for me. I am certainly not cured – but I wouldn’t being doing as fantastically well as I am, if I had followed the one strict ‘book’ of Hyperacusis guidelines. Instead, I and others - have followed a slightly different path which has worked excessively well.
With unbelievable joy I would immediately give away this Hyperacusis if it was even remotely possible. It has changed my life radically – for suddenly I felt as if I was standing upside down in the middle of a screaming freeway, and wobbling in the process. The years of adjustment were not easy and I still on occasion, I find myself frustrated or crash from too much sound exposure. But when I look back, and then realize how well I have progressed, I pick myself up and again smile at the world.
It is unfortunate that at present there is no cure for Hyperacusis – however, I look forward to the future when there will be one. This will be totally due to those specialists such as Marsha Johnson and the like, who are not afraid to reach out past those boundaries of what some think is ‘
the only way’ (
even so there is no cure). For these specialists such as Marsha, bother to create new patterns and are not afraid to stretch boundaries and look for more. It is because of specialists such as this, that I have done so well. May we encourage them to continue with their commitment. I can not express my appreciation enough.