Never Give Up.. Theses Parents Never Did....
And they saved a generation of children to be able
to run and play... Because they refused to accept
and often clashed with doctors , scientists and support groups...
Who said it couldn't be done....
Their courage and dedication.. Helped familys around the world..
http://www.myelin.org/aboutoil.htmhttp://www.myelin.org/Lorenzo's Oil...
One familys search.. To help their child...
Kind of reminds me of hyperacusis and tinnitus...
It was hard to get help as well by the regular establishment.
Minds need to be changed.. More answers need to be found..
Its not easy to have an uncommon or rare disorders..
That takes courage and dedication as well....
It can be done.... It's a search for answers..
Never give up that someday......
More answers will be found...
For SSSS and other uncommon disorders...
They said it would never happen..
For Lorenzo..
Or other children. Like Lorenzo..