Sharon thank you for explaining Sandi's dreadful circumstances so well typed!. I could go on and try and express my anger and sadness and mixture of feelings at reading this, but I'll refrain from the comments I would like to make about certain people in the medical profession to try and keep this thread relatively decent and say that I had no idea of quite the extensive suffering and burdens she had to carry for all this time and the heroic efforts she made, all the while helping others and trying to get word out. Frankly right now I am quite sickened and upset, but again so glad to have met such a person and so glad of what comes next for people like this.

Thanks again for giving us so much more insight on her situation and suffering, really appreciated.