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Joined: May 2006
Posts: 326
Master Member
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Hi everyone,
Just sharing this post that I made on a yeast forum with you all. I'm hoping that it might help someone out there. It was from reading a health forum over a year ago that I originally got the idea that I might need to be tested for Lyme Disease and Lyme Co-Infections. Hope at least someone out there can benefit from my story. Because not only do I suffer from mercury toxicity from all the amalgams I had for so long, I also have had undiagnosed Lyme Disease for a long time.
I Haven't been posting or doing emails or anything. Just have been busy being sick and searching. And over the past 7 months or so had developed the Angry Attitude from Hell about not knowing all the answers. lol For a long time, I have been convinced that everything hadn't been found with me, but didn't have a clue what could else could be going on.
Meanwhile I was busy trying to address newly found weaknesses in my body with other doctors. And have been hoping to one day perhaps try to do a heavy metal detox under the supervision of a knowledgeable doctor. But, I'd been told by my holistic dentist that a detox like that couldn't take place until all existing infections had been identified and treated. And I've been told that in my case, without detoxing some of the surplus heavy metal problems, my candida will not go away or be controlled. Also, my chronic infections will not go away or get under control without eventually doing detoxing some of the excess metals in my body. ugh!
Anyway, although I requested testing for Lyme and Lyme Co-Infections last year, the doctors evidently didn't perform the proper testing. Long story short, I sought out the help of a Lyme Literate Doctor and my tests have come back positive for Lyme Disease. I also have at least a couple of co-infections that are seen alot in Lyme Disease (i.e., bartonella, mycoplasma). My Lyme is late Stage Lyme and it is considered Chronic.
It seems that Lyme is epidemic in the U.S. and it is both epidemic and endemic in my State. It's going largely undiagnosed. :-( Important Factoid: Lyme Disease and Lyme Co-Infections are also all over Europe. Lyme symptoms will mimic mercury toxicity and metal toxicity and also candidiasis. Since I have both candida and mercury toxicity, it was difficult to get to the bottom of everything. Now I know that I have Lyme and Co-infections as well as heavy metal toxicity and candida (and other things!).
My yeast is back and is very bad. My whole-body inflammation is some of the worst the doc has seen. I've got alot of work to do!
Just wanted to let you guys know this info about Lyme though. Especially for those people who have been given multiple diagnoses and have not felt significant improvement over time. Some of the diagnoses that can be possible red flags (and warrant proper testing for Lyme in order to rule it out) are: Irritable Bowel Syndrome, Fibromyalgia, Chronic Fatigue Immune Dysfunction and there are more.
I'm going to be going on aggressive treatment. I'll require antibiotic therapy, plus herbal therapy and everything in between. I'm hoping that permanent damage hasn't been done somewhere in my body for having this so long. I'm going to use an integrated approach, of course. Nothing else could possibly work in my opinion.
I'm positively disgusted with practitioners and doctors, but find that I really need them in order to get access to proper testing, necessary pharmaceuticals and such, and even some of the better, professional quality supplements and herbals.
How come we have to diagnose our own damn selves?! lol It took me about 6 years to find out what is probably the major culprit in my immune dysfunction -- Lyme Disease. But, like so many of you, I've been sick for far longer then just the past 6 years. And then I had to figure out which "sophisticated" tests needed to be done and how to find a doc who knew what they were and how to interpret them. Ugh. I know I'm preaching to the choir here -- you all have been down this road in spades!
Diagnoses I've Received So Far On My Labyrinthian Journey:
Systemic Candidiasis-Candida Related Complex Late Stage Adrenal Fatigue Estrogen Dominance Irritable Bowel Syndrome and Leaky Gut(also two bad bowel bacterial infections- citrobact freundii and C. Difficile) Chronic Fatigue Immune Dysfunction Fibromyalgia Heavy Metal Toxicity Chronic Epstein Barr Virus (now gone after removing tooth amalgams and root-canaled tooth) Chronic Mycoplasma Infections Raynaud's Disease Loads of Gyn issues and problems Lyme Disease (also bartonella and mycoplasmas)
For what it's worth, I don't ever recall having been bitten by a tic. Nor did I ever see any sort of bull's eye rash.
Sending everyone here just tons of grumpy love and huggles, lol! Sharon
p.s. I know I owe some of you long-overdue emails or messages. My Lyme brain has just been a tad difficult and the neurological symptoms are overwhelming. Not to mention the fact that my attitude had been far worse. I owe you deep apologies and hope you'll forgive my selfishness in "being away and out-of-touch." Blessings to all of you dearies.
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