Thanks for replying. Its sheer hell isnt it. I am extremely impressed with your timing, I have a job remembering which day of the week it is ! I think the thing that hurts is, I've paid thousnds to this hospital alone, and maybe stupidly had such faith. I suppose we all cling to the hope that someone out there can pinpoint the problem. I've always said again, and again, perhaps stupidly, that if I just know the real cause, the real root of the problem, I could start to get better and know what to do in deciding treatment and whats best. You truly sound like a courageous person and I thank you for the post. I want my life back so badly, and not really for my sake, but my children, partner and friends I have left. I'd love to hear more of your story, obviously only if you want to share it. You could post me privately if you wish. Thanks and Best Wishes to you Tracy.