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Joined: Nov 2006
Posts: 573
Elite Member
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This may be one of the last posts of mine here, as I can't cope with this anymore.
With each day I'm losing more brain function, the last couple of days my language skills being affected, I can't express myself anymore, I sleep the whole day, don't even underestand the sitcome jokes I did merely 1-2 weeks ago, and it all feels like I'm losing more and more brain connections. It's like the connections I was using before don't exist the next day and I'm viewing the word in a narrower way.
my brain doesn't just feel tight, the brain matter feels hardened, specially in the front of my brain, just behind the forehead, the area that has shut down most.
Have no logical functions anymore. I've lost a lot of memories, skills, the vast knowledge of heavy metal toxicity that Ii got, of this forum, the people etc, moemory of what my personality is like etc. Surprisingly my short term memory is not that bad, better than some time ago or at least it seems so. I'm autistic, can't read people. Motor problems, etc etc.
Now those symptoms are clearly brain mercury symptoms and the last time I used a brain chelator - ALA- was over a month ago which probably gave me a bad brain redistribution, but I haven't been using it since nor any other brain chelator.
So I don't understand why the hell I'm still getting worse , surely I could have got worse after that ALA, which caused damage, but it seems the changes are still ongoing. Why?!?
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Joined: Jun 2006
Posts: 4,178
Master Elite Member
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I dont know Jinx, I ask the same thing many times about myself. I dont get it and dont know what's going on and why I am not healing properly.
I haven't even got amalgams anymore!!! and haven't for years and years.
Have you considered "trying" NDF? Remember the post that someone was going to send some to you? I know that you have been harmed by so many things or found them unhelpful, but some people have used this with amalgams and found it helpful. Some again feel worse, some better and that is why you have to start with only one drop, even in a big glass of water! Or you can put a drop down the back of your throat.
But again you start with putting a few drops on a toothbrush and brushing your amalgams and then spitting and rinsing. After that, you can take a dose.
It maybe worth a try because it's beyond me what other suggestions to make. The obvious is of course to get the rest of your amalgams removed, but we both know what the last removal did to you <img src="/ubbthreads/images/graemlins/frown.gif" alt="" />
Personally if DMSA did not help, I would probably try oral DMPS as another option. It is much better tolerated than DMSA for many people and safer and apparently more effective. You can get it from a compounding pharmacy.
Again though, we are talking about strong chelating agents and we are talking about you still having amalgams, so there is the same risk!!! but they are at least options if you feel there is nothing more to do or try. Risky, but who will remove your amalgams safely? Nobody can find a bio dentist in your area, so it is just ridiculous. The whole situation is digusting and I wish it could be undone, as I do with myself too and many others on here who have been made worse from dental work. Either amalgam placement OR replacement. Things can so easily go wrong, that it's astounding what happens to the entire person just from some dental work. Why some get recoveries and improvements and others go through hell is a mystery.
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Joined: Jun 2006
Posts: 4,178
Master Elite Member
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Jinx, the other option might be to simply stop taking ANY supplements at all and concentrate souly on your diet and leave everything as plain as possible.
If in fact any of the things you are taking are causing adverse effects or even encouring further uptake of mercury from amalgams somehow, then you'd be wise to oust them all temporarily at least to give your body a completely break and a trial to see what happens.
That's what I would do and in fact, i would probably do that before trying anything else. I would get rid of supplements, caffeine, dairy food and grains, fruit, honey or anything else with sugar or natural sweetness. and concentrate on meat, eggs, vegetables (no potatoes) and the good fats, and stick with water and herbal tea for beverages (or some lemon in hot water).
Ok, you may already be doing that and I know you've heard it before, but I know that in your state sometimes you need to hear it more than once because of recall and concentration that so many struggle with in mercury.
I know you're getting so many contradictory answers, but it is really hard to find the magic bullet. And I dont know if there is one. But I would start with ousting the extras and concentrate on diet and go from there and see if things even remotely balance a little. If not, then you may want to try the other detox options above.
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Anonymous
Unregistered
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This is not mercury toxicity, this is a nutritional deficiency caused by unwise supplementation. I bet so much zinc, vitamin C, and B vitamins (B6) have caused copper imbalance. Just stop EVERYTHING and go on a whole organic food diet. NOT EVEN A SINGLE PILL. Eat plenty of organ meats (very important), lean protein, EFAs, Vegetables and some whole grains.
Mercury is without doubt a big problem but sometimes people's arrogance is even a bigger one. It is never wise to start supplementation without understanding your body chemistry and mineral balance. Mercury toxicity with copper deficiency is very different from mercury toxicity with copper toxicity. Mercury is not the only variable in your problem.
Just remember that a good diet (paleo is the best) always wins against ANY supplement program, because it delivers nutrients in the right proportion.
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Anonymous
Unregistered
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Mercury is without doubt a big problem but sometimes people's arrogance is even a bigger one. It is never wise to start supplementation without understanding your body chemistry and mineral balance.
Now was that a kind and supportive way to state your opinion Elias? I mean, honestly, talk about arrogance -- isn't that rather like the pot calling the kettle black? jinx is having a really, really hard time. A little sugar with your salt might be nice Elias.
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Joined: Nov 2006
Posts: 573
Elite Member
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bex I got the NDF in mail today, soon after writing that post , and than I took just ONE DROP for trial, took it through a straw, 30 minutes later I was lying in bed like a VEGETABLE, couldn't say a word, loosing consciousness and touch with reality it got better now, but it's worse than before , clearly some brain redistribution, now I'm worse than ever. I don't know what to do anymore, not just out of confusion, but simply complete lack of brain power. I fear this is the end.
elias - arrogance? and what's copper's role in all this?
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Joined: Apr 2007
Posts: 87
Senior Member
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Jinx,
I had bad headaches and brain fog, but B vitamins have helped. I know you're trying them, but I found that small doses of B6 (30 mgs), Folic Acid (200 mgs) and B12 (can't remember the dose) have really, really helped.
They're the only things that have helped me since I fell ill. Or at least, nothing else was working until I started taking them. the change was dramatic and pretty quick.
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Joined: Jun 2006
Posts: 4,178
Master Elite Member
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If Elias is taking a jab at me for attempting to suggest supplements to Jinx, that was a real nice way of doing it (NOT). For starters, Jinx does NOT have any doctor or dentist that is into this in his area, he has already had this suggested to him many times.
On top of this, he has pleaded on this forum for help many times and it has been very hard to either ignore it on the basis that I'm not a doctor or try to give him suggestions that I have had from professionals,such as biochemist Andy Cutler who understands mercury and most likely better than you do Elias who suggests a basic supplement programme for all those suffering from mercury and or other metal toxicity or even "copper".
You cannot really win on here with certain people because if you do try and help you get criticised for being "arrogant" when you give supplement suggestions, but if you don't, then you're unhelpful and cruel.
At any rate Jinx, your reaction to the NDF? Enough said. If one drop caused that, then I would drop everything and concentrate on your diet. Leave out all supplements and give your body a break. If you want to try them again later down the road, why not try ONE at a time and test your reaction?
I apologise Jinx if I have come across as arrogant on here by trying to suggest things to you, as you know I have stated umpteen times that I am not a professional and am only passing things on. One cannot do much when you do not have anybody in your area that is doing anything for you.
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Anonymous
Unregistered
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[quote]"This is not mercury toxicity, this is a nutritional deficiency caused by unwise supplementation".
lol, if this isnt arrogant I dont know what is. Jinx got poisoned by mercury exposure from his last removal, did you not know that? Also he wasnt on any of that damn supplementation before until people suggested it on here after him suffering so much.
Explain that Elias. Still copper? Nahhhhh dont think so. Think unprotected removal procedure. Jinx will tell you himself.
You sound a lot like that Jill under another pseudonum. Pity you werent closer to Jinx so you could do a full medical evaluation eh?
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Anonymous
Unregistered
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Elias I dont think anybody was being arrogant on here trying to help Jinx. The supplements suggested are basic and I see them commonly recommended on candida forums by people who have studied it for years and gone through it and also I have Andrew Cutler's book here and they are his basic suggestions for anybody. I also have a seperate health diiet sheet that has yet again similar supplements. Nothing major seems to be recommended. They are pretty basic.
Doing blood work to find out more specifics is a great idea, but some people dont have docs to help them out much in this field and many of us are straw clutching. Your comments were unfair and misplaced.
And you are incorrect, Jinx does indeed have mercury poisoning which is why he's on this forum as most of us are....
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Anonymous
Unregistered
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wow elias that is so true. I noticed I got unwell when taking loads of supplements so this could be form too much copper...or it could be unblanaced chemistry..
Do you think st johns wort could do this? Or multi vitamins too much or amino acids?
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Anonymous
Unregistered
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Sorry guys, I understand all of you are trying to help. But I am still convinced that the supplement madness is getting out of control. It seems now everyone is a vitamin guru. People should understand that recommending B complex 50mg to someone is not the same as recommending him to eat more seeds and nuts. Recommending someone tons of antioxidants, zinc supplements and liver herbs is not the same as recommending him to drink more water and eat more vegetables. Even natural things and vital nutrients can become a big problem when not used wisely and under the supervision of someone with serious medical background. I am not such kind of person, don't know about you. I have just read some of jinx's posts and this is what I think. Let's suppose the initial brain fog is due to mercury and it get worse after first removal. Well, but after that Jinx goes progressively worse for months. The half life of mercury in blood is 2-5 days. And once it is stored in brain symptoms don't change, they don't get worse. Jinx is describing just the opposite picture – constant worsening. This is what makes me think it is due to wrong supplementing program.( Jinx started supplements before with first removal, not after feeling so bad) I don't pretend to understand body chemistry very well. However, It is well known that one man's cure is another man's poison. Mercury toxic individuals are not all the same. Despite of all being mercury toxic they have very different body chemistry and taking the same supplements won't always produce the same results. If I read correctly, someone was recommending Jinx to take DMSA. Really bad idea according to Andy Cutler's protocol, since DMSA won't chelate brain mercury but can definitely cause redistribution if body mercury is high. ALA is even worse when body mercury is high. Chealating is really like playing with fire when body mercury is high. JINX, PLEASE STOP USING CILANTRO, DMSA, ALA, CILLANTRO, CLORELLA, GARLIC AND HIGH SULFUR FOODS. Stopping them wont do any harm, but can help. What about COPPER? With Copper imbalance I am referring to copper deficiency. http://mednews.wustl.edu/news/page/normal/7835.html <-- Good article on copper function in human brain. http://jn.nutrition.org/cgi/reprint/97/1/42.pdf <-- Study on copper deficiency and brain function What Cause Copper deficiency:  High Zinc, Low copper intake  High dosage of vitamin C  Vitamin B6  High Doses of Manganese and molybdenum  Overactive metabolism (all those liver herbs also enhance copper exertion)  High fructose, low copper intake I was copper deficient for several months due to high doses of zinc, vitamin C, B complex, copper deficient diet and tons of fruit. Many of my symptoms were similar to yours. I would like to state that I don't know if this is your case but trying my suggestion won't hurt. Stop everything you are taking right now. Let's say for a week. Go on a paleolitic type diet (but the low fat variant) -> lean meats, organ meats and plenty of vegetables. The best source of copper is liver, try eating 3 servings per week. Try to reduce copper antagonists like manganese (grains and nuts) and zinc. I understand you are convinced your problems are mercury related and I am sure some of them are. But things not always are what they seem. You won't lose anything trying my suggestion. If it doesn't help it won't hurt.
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Joined: Jun 2006
Posts: 4,178
Master Elite Member
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Hi Elias, sorry if I took you a bit up the wrong way. And I take onboard what you are saying and realise the need to really take the safe approach particularly with someone who still has amalgams.
However, you got the DMSA comments slightly incorrect. Andy recommends DMSA as the FIRST course of action and if used appropriately it will reduce the high blood levels that people poisoned with mercury have. It does not cross the blood brain barrier, so it is safe to use to begin detoxing mercury in the early stages (right after amalgam removal or recent mercury exposure). It will cause redistribution if it is used inappropriately (like randomly), which is why he says to take it every 4 hours around the clock, so the mercury is not bounced around erratically but instead escorted out more evenly. REdistribution is not completely avoidable anyway, even exercising can cause that! And in actual fact DMSA taken the right way has been known in some cases to actually correct a bad redistribution or backlash from wrong chelation. But again, anytime mercury is moved / removed, some redistribution is expected because it has to resettle also and causes symptoms when it's being moved even if it's a safer protocol.
ALA crosses the blood brain barrier and should NOT be used unless the person has already reduced blood levels (with DMSA or leaving it to happen naturally), or they will risk the ALA taking the still high body levels of mercury up into the brain with it.
This is why Jinx would need to get his blood levels of mercury down and DMSA would help him do that BUT he still has amalgams, so you see the problem? If he had them out he would be free to chelate with DMSA or DMPS to reduce the blood or his body would do this on its own gradually (though far slower and not as effective).
Later ALA can be added to chelate organs/brain. as for supplementation, that is a hard one. I know for some it has been very helpful even without getting blood testing. General antioxidants are seriously depleted by toxicity, and the addition of vitamin C, vitamin E, selenium, milk thistle etc can aid that and even encourage detox to occur if the mercury is more accessible, plus provides extra protection against it.
I do understand what you are saying and how supplementing this or that can then cause imbalances elsewhere or deplete others. It's really difficult to ignore someone asking for help, when i have andy's book here too and yes anon, the supplements I spoke of are already suggested by him and many others who have studied toxicity or even candida for years on end and find the typical supplements to be the rule for most rather than the exception and seem to work pretty well generally for most people.
Nobody is pretending to be a chemist here, most of us are amateurs I assume, but how many of us have been harmed by so-called experts?. We'd not be here in the first place trying to help eachother out with little or no qualifications at the sametime. instead we have been forced into investigating ourselves and doing much reading and with that and many mistakes along the way we try and use that to help or warn other people.
Again, anything I mention is never out of my own imagination or me getting ideas, it is always from qualified people who have often been through it themselves and treated MANY MANY people for many years. I think they definitely know a thing or two and the proof is in the pudding, which I have seen often.
You cannot expect all people to respond perfectly or even favourably, but if many do to similar protocols, then surely Jinx has a right to hear that and give it a go?
I hate to gamble with his health, but he hasn't got anybody where he is and says he is getting worse regardless. But yes I do agree with you that diet should be the first aim to get right without any added supplements or chelation and go from there and later perhaps trying out things one by one very gradually and seeing the response.
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Joined: Dec 2006
Posts: 220
Veteran Member
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A hearty amen to both Elias and Bex's post...Jinx, when I first found out I had mercury toxicity 11/06, I had already been exposed to mercury by swallowing chunks back in 1999.
When the doc told me I FIRST had to detox a little before chelating he suggested Selenium and Chlorella along with some herbal tinctures he gave me...along with changing my diet. Within two weeks I thought I would absolutely lose my mind! My husband and I figured out that all the problems started with the supplements, which I stopped and within a few days got relief of the sudden panic attacks and fear/anxiety and insane feeling that had come on.
My doc and I figured out that I couldn't do any chelating for a little bit, just till I got the diet worked out. And you DO need to get the diet worked out, it DOES make a difference.
After 4 weeks, I was able to add tinsy, eensy, little bits of supplements. My body couldn't handle hardly anything but changing the diet at first. Then I added ONE thing. Then one month later I added ONE thing. I tried Algin twice, had to wait until just a week ago before I could add that.
So, I am in agreement with Elias, that maybe you might be throwing everything in there to help, but maybe it would help to just start fresh, first the diet, then add one supplement and see how it goes.
I know that may seem hard because like all of us, once you know you got the poison in your system you want it out, I think I've said it before that if I was a dentist when I found out that I was toxic, surely I would have pulled all my teeth by myself without anethesia or anything because I was sickened by the thought of that stuff being in me.
Long story short, how about giving the diet a try and do a little at a time? You have NOTHING to lose.
My heart goes out to you, if I could, I would pay for you and Bex to get help. My prayers are with you.
Gabriella
Gabriella
Step by step, that's how you achieve success.
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Joined: Apr 2007
Posts: 2,153
Master Elite Member
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It always seems people get worse before they actually get better with chelation. The NDF is suppose to be good stuff, use it. Expect that you will feel like heck for 2-3 weeks while using it at first but keep on with it and push through that hard phase you've got that makes you keep quitting And then don't quit.
You obviously have not lost brain function, your sentences are fully coherent and your spelling is excellent. You are just having a bad few days, we all do.
Just my two cents.
Chin up <img src="/ubbthreads/images/graemlins/smile.gif" alt="" />
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Anonymous
Unregistered
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Try going on a regimen to fight candida. Try using caprylic acid or other anti candida agents. Eliminate sugar and alcohol from your diet and decrease the amount of simple carbohydrates you eat. Eat plain unsweetened yogurt or take acidophilus supplents. See if this helps. If you get no reactions at all to these or to garlic then you may not have a candida problem. If you feel worse when taking these then it may be a candida die off reaction and you may eventually feel much better if you stick to the regimen.
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Joined: Nov 2006
Posts: 573
Elite Member
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been there, done that. plus if u have a heavy metal problem next to candida one, you will be realising a lot of toxic heavy metals when killing off candida.
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Joined: Jun 2006
Posts: 4,178
Master Elite Member
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This is true when the killing of the candida is done with antifungals too early on. If the diet is done first and for long enough time period, much of the candida will have already gradually lessened in a safe way.
Later if someone wants, they might get away with antifungals, but not until they have been on the diet for months usually. Up to them if they want to do it, but it can definitely kill candida in large numbers, and if the person is metal toxic, candida very often contains toxic metals because of that and will release them if it's killed (split open) by antifungals. Diet simply cuts off candida's food supply and candida just basically gets sick and starves slowly to death. There isn't any sudden release of metals as far as I know.
Having candida alongside mercury to me isn't good. It makes mercury more toxic (methylates it), plus frustrates healing, prevents proper absorption of nutrients, adds its own toxicity in the mix (which can be as bad as mercury), overloads the gut and liver (which is needed for detox). and can cause many of the same symptoms as mercury.
Healing often doesn't take place properly if a person is not consuming a healthy sugar free diet. IT depends on how weakened they are. For me, I had to do the candida diet or I would probably not be here now.
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