Is anyone else totally confused as much as me about treatments. I have read and heard so many different things from people I have visited that I have absolutely no idea what to do next. The toxic Neurologist I saw said nobody should be self treating with DMSA as it is far too dangerous. She was then going to give me an infusion of ALA. I didnt know what it was at the time, but as my vein collapsed she couldnt give to me anyway. I dont know now if ths would have been dangerous to me. This is coming frome someone who has worked with toxic patients in the NHS for twenty years , so of course I went with total faith in her. Now I dont know what or who to believe. What scares me is that we are individual and have different sensitivites. I f things were right we should all be diagnosed properly and treated as such. I find the whole thing so confusing it alone is enough to drive you insane. I am scared of makiing myself any worse than I am, I can't afford to just experiment with things as I, as others, have a family to take care of. Its a nightmare, we shouldn't have to diagnose or treat ourseves with something so serious. Does anyone else feel like this? Sorry needed to vent feel so sad and angry that is going on.